Challenges Faced by Parents of Children with Autism in Gilgit-Baltistan: A Comprehensive Analysis

Abstract

This study explored the multifaceted challenges faced by parents of children with Autism Spectrum Disorder (ASD) in Gilgit-Baltistan. Using a quantitative research design and structured questionnaires, data were collected from 50 parents (21 fathers and 29 mothers) to analyze social, emotional, financial, and family-related difficulties. Results revealed that stigma, social isolation, and misconceptions about autism, such as beliefs linking it to poor parenting or supernatural causes, remain widespread, leading to judgment and exclusion within communities. Emotionally, parents reported high stress, anxiety, and sadness due to caregiving demands and lack of professional mental health services. Financially, the cost of therapies, medical care, and travel to distant treatment centers imposed severe economic burdens. Family life was also affected, with mothers assuming most caregiving responsibilities, creating marital tension and emotional distance, while siblings often felt neglected. The findings highlight the urgent need for community awareness, professional training, and institutional support to promote inclusion, relieve parental stress, and strengthen family well-being.